The Sickle Cell Foundation of Georgia is inviting families and supporters from around the state to Sickle Cell Day at the Georgia Capitol on Wednesday, Jan. 23, 9 a.m. – 1 p.m.
The event will provide an opportunity for state legislators to hear concerns and challenges from those affected by sickle cell. Organizers say this year’s message will focus on access to care in rural Georgia, Medicaid expansion and prescription waivers for from those impacted by the debilitating disease.
Sickle cell disease and sickle cell trait are genetic blood disorders that affect nearly all populations, but are disproportionately found among African Americans. Sickle cell disease causes chronic pain and can be fatal. Sickle cell trait carriers experience few, if any symptoms, and may not be aware of or take necessary precaution to prevent passing along the gene. The Foundation encourages everyone of child-bearing age to be tested for sickle cell. Testing is available at the Foundation by appointment.
Since 1971, the Sickle Cell Foundation of Georgia has advocated for improved treatment, research, and a better quality of life for patients and their families. Founded by Dr. Delutha King a retired Atlanta physician who remains active on the board, and the late Dr. Nelson McGhee, Jr., the Foundation conducts sickle cell education, testing and counseling throughout the State.
The program at the Capitol will include a continental breakfast and lunch.
The Foundation is asking the sickle cell community to show up, stand up and help Georgia patients and their families living with the effects of Sickle Cell Disease.
To attend Sickle Cell Foundation’s Capitol Day and the preparation meet-up on Thursday, Jan. 17, RSVP at the Sickle Cell
Foundation of Georgia, Inc. Email: firstname.lastname@example.org or call 404-755-1641, ext. 206 or register online at http://sicklecellga.org/2019-sickle-cell-day-at-the-capitol/